Thank you for your different points of view. I sincerely hope there are no health effects. My family had never shown any sign of being carriers before in routine blood tests, but I got tested specifically after I found he was a carrier. I tested negative, thankfully.
Maybe more upsetting is that we had discussed family health history, including genetic diseases, with his family before getting married. This is part of the reason I am so upset. By asking, wasn't it obvious we cared about health matters?
My parents had suspicions about him and his family generally, but I encouraged them to trust him. Now my parents' worries have been confirmed, and I feel I've been cheated. I don't know how anyone could not think this wouldn't happen by withholding this kind of information before marriage.
And yet, even now, they won't admit that they have done wrong by not disclosing. They just act as if nothing is wrong. Now, I know that his father and his siblings were actually diagnosed with the condition (and he was, too), and yet they never brought it up. They know it's a family disease. They know they are anemic. Doctors had told them the reason for it. I do not believe that it just slipped their minds. I feel hopeless that they just disregarded my feelings.
But some of the perspectives on this board are interesting. I see some people apparently think Thalassemia is not significant. I wonder are these people carriers or non-carriers? My family (which is indeed conservative), and I thought most Asian families who don't have genetic diseases, would definitely think twice about marrying into a family with a genetic disease.
That is one of the concerns for the future. Will my kids need to worry about being rejected because of this. Will I feel it's necessary to hide it? I will encourage them not to hide it. There are people out there who do not mind it, but everyone ought to have the opportunity to make the decision of whether they want this in their life, for themselves. But to be honest, I wish I didn't have to in the position of needing to tell them that.